April is coming fast! It signals the onset of spring and has also become Autism Awareness Month. Today, everybody is raising awareness about anything and everything, but Autism Awareness Month should definitely be highlighted to every parent and parent-to-be. Early intervention is the key to helping put the "puzzle" that is ASD together. My son is living proof of what can be accomplished through early intervention, sensory work, and consistency. I also thank from the bottom of my heart the dedicated people who put so much of their time and effort into my son's early intervention. There is no magic wand to wave over our ASD kids to make them better, it takes hours of therapy, love, patience, and consistency. I also think that one of the missing pieces to this puzzle is sensory related. My son's teacher and co-teacher told me that when he gets over-loaded and they take him out of the classroom environment and do focused sensory work with him for 10 or 15 minutes, he can come back into the classroom and focus diligently on his work. I thought to myself, "well, that's why sensory work was written into his original IEP." They were preaching to the choir on that one. For those of us parents that have ASD children, everyday is Autism Awareness Day---there is no escaping it, it maps out our days and our nights and effects every decision we make-even the most seemingly insignificant ones.
On another note, HBO has made a movie called "Temple Grandin." I can't tell you how excited I am about this movie. It has already aired, but I don't have cable let alone HBO. Clare Danes plays Temple Grandin in this movie and David Strathairn plays the professor that so influenced her life, and I believe Julia Ormond plays her mother. After the diagnosis of my son, I felt like I was being sucked into a black hole. There was too much information out there, too many different forms of therapy, too many parents who said they discovered the miracle that cured their child. I stayed away from all of it, but well meaning people in my life would come to me with all of that information and then some. I didn't care about someone else. ASD is a Spectrum Disorder, hence the ASD which means that it will present itself differently in every child and every course of treatment will be different, will have to be tailored to your child. I wanted to know how my son saw the world--I wanted to know how his brain worked differently from mine. I can't climb inside his head, but I could read about people who had the same disorder. So my son's case coordinator, a very dear lady who was born to do what she does, told me about Temple Grandin's books. So I bought them and read them. They are a must for any parent with a child on the spectrum. I also read a book about a young man that defined Pi to some incredible degree, but his name escapes me at this point.
I think that April is the perfect month to be Autism Awareness Month. April brings spring to us; we can begin to do more than just see the green grass and budding leaves in our minds' eye--we can see it happen right before our eyes. It gives us a fresh start and new hope. That is what raising awareness of Autism does---it gives parents with ASD kids hope for a fresh start, hope for a new treatment, hope for that one idea that becomes a breakthrough in what ASD is and where it comes from. For me, each day is another chance to help my son move one tiny step closer to what all parents with ASD kids want---a bright and independent future for their child.
Friday, February 26, 2010
Wednesday, February 24, 2010
Misty Musings
Today I was driving home from work--I always enjoy the ride home because of the beauty of this place. The snowstorm was over for the moment but the clouds hung low over the hills; misty curtains in shades of gray gently hugged the hills and softened the hard lines of stark trees and power lines. I envisioned curling up in front of a fire with a mug of hot cocoa and shutting out the world. But the fireplace has insulation stuffed up into it and the chimney needs to be checked. The driveway needed to be shoveled and the trash can brought back to the house. Even without a fire in the fireplace my house is cozy. With pictures on the walls and all of our things around this house suits me perfectly--if I could give it a hug I would.
The 2010 International Toy Fair was last week. A train ride down and taxi to the Javits Center and we were there. Both my dad and I had preregistered this year so all we had to do was pick up our badge holders and head on in. I was surprised at how much smaller the show was this year. There was so much of the same stuff everywhere, but there were a few things that really stuck out. I was disappointed that I will have to wait a few months longer for Bixby the Bald Eagle from Zoobie Pets. Some stand outs were Fun and Function--products designed by an OT----we will be carrying some products from their line this year. Also coming up in April is the annual Autism walk and Expo at the Dutchess County Fairgrounds. This year Sensory Assault Operations will be set up to sell all of our products and will be accepting credit cards too!
The 2010 International Toy Fair was last week. A train ride down and taxi to the Javits Center and we were there. Both my dad and I had preregistered this year so all we had to do was pick up our badge holders and head on in. I was surprised at how much smaller the show was this year. There was so much of the same stuff everywhere, but there were a few things that really stuck out. I was disappointed that I will have to wait a few months longer for Bixby the Bald Eagle from Zoobie Pets. Some stand outs were Fun and Function--products designed by an OT----we will be carrying some products from their line this year. Also coming up in April is the annual Autism walk and Expo at the Dutchess County Fairgrounds. This year Sensory Assault Operations will be set up to sell all of our products and will be accepting credit cards too!
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